Quote: Originally Posted by Dbld78 UPDATE!
So my mom saw Dr. O'Malley at Penn on tuesday, she feels more comfortable now with her diagnosis and felt more comfortable with him. She felt like he was more knowledgeable about the disease and she found that more comforting. They have given her a diagnosis of NF2 and believe it might even be Schwannomatosis, which is even more rare!
I've decided to go on a joint appointment with my mom for our genetic counselling, it'll be a family affair!
That sounds really good. I'm glad she found a doctor that she likes, that's really important. Keep us updated!